Internet support forums & Web sites
A Heartbreaking
Choice - the official "AHC" support group, is a private, membership only discussion forum.
Baby Center - Termination for Medical Reasons message board.
Center for Loss in Multiple Birth
(Climb) - Loss support for Selective Reduction and loss of twins or multiples.
Compassionate Friends - Grief support after the death of a child.
Grief Watch
- Resources for bereaved families and professional caregivers.
M.I.S.S. Foundation -
Providing crisis support after the death of a child from any cause.
Potters Syndrome - Support Site.
Share Pregnancy & Infant
Loss Support, Inc. - To serve those touched by the death of a baby.
TFMR, A Loving Choice - A Private Facebook Support Group.
National Support Groups
Genetic Alliance
4301 Connecticut Avenue, NW, Suite 404, Washington, DC 20008-2304
(202) 966-5557, fax: (202) 966-8553, Toll-Free Helpline: (800) 336-GENE (4363)
email: info@geneticalliance.org. Has a listing of support groups for nearly every type of
genetic problem.
Center for Loss and Life Transition
3735 Broken Bow Road, Ft. Collins, CO 80526, (303) 226-6050
CHERUBS: The Association
of Congenital Diaphragmatic Hernia Research, Advocacy, and Support
PO Box 1150, Creedmoor, NC 27522, (919) 693-8158, e-mail:
cherubs@gloryroad.net
March of Dimes: Birth Defects
Foundation, 1275 Mamaroneck Avenue, White Plains, NY 10605
National Organization for Rare Disorders. Inc.
(NORD)
P.O. Box 8923, New Fairfield, CT 06812-8923, (203) 746-6518, Fax: (203) 746-6481, Toll-Free: (800) 999-6673, email:
orphan@rarediseases.org
A Place to Remember
Support materials and resources for those who have been touched by a crisis in pregnancy or the death of a baby
Pregnancy and Infant Loss Center
1421 E. Wayzata Blvd, #30, Wayzata, MN 55391, (612) 473-9372
Support for Prenatal Decision
P.O. Box 7523, Redlands, CA 92375
RTS Bereavement Services
1910 South Avenue, LaCrosse, WI 54601, (608) 791-4747, (800) 362-9567
SHARE, Pregnancy and Infant Loss, Inc.
St. Joseph's Health Center, 300 First Capitol Drive, St. Charles, MO 63301, (314) 947-6164, (800) 821-6819
Remembering Our Babies -
Pregnancy and Infant Loss Remembrance Day
Overseas Support Groups
Induction for Fetal Abnormality (I.F.F.A.)
PO Box 39, Waratah, NSW 2298, Australia
Support after Fetal Diagnosis of Abnormality (SAFDA)
Royal Hospital for Women, 188 Oxford Street, Paddington, NSW 2021, Australia.
Contact Sheila Sim (02) 339-4225 or Many O'Reilly (02) 438-7324
ARC - Antenatal Results and
Choices
73-75 Charlotte Street, London, W1P 1LB
Helpline: 0171 631-0285, Admin: 0171 631-0280
From outside the UK, please call:
0044 171 631-0285/0280.
The Splash Project
- The Splash Project
c/o Culdrose Community Centre
Hibernia Road, Helston, Cornwall, UK TR13 8DJ
email: support@thesplashproject.org
Local Counselors and Support Groups
All groups are alphabetical by State/Province
Arizona:
Phoenix Area: Phoenix Perinatal Associates
Nicole Weston, MS, Genetic Counselor at (602) 528-0060 x561.
British Columbia, Canada:
Vancouver, British Columbia, Canada area: Empty Cradle
52548 RPO Coquitlam Centre, Coquitlam, BC V3B 7J4 Canada.
Contact Patty Lou Bryant at (604) 469-1272.
California:
Los Angeles area: Pregnancy Loss Support Group
2001 S. Barrington Ave, Suite 307, Los Angeles, CA 90225.
Contact Lee Forseter at (310) 837-5842.
Oakland, California area: Beyond Choice, Genetic Support Group
Contact Jeanne Menary, PH.D. (510) 845-4656
or Ann Bourguignon, Genetic Counselor, (510) 752-6755.
Pasadena, California area: Caring Connection
Contact Wendy Kohlhase at (818) 577-4002
or Alfigen/Genetics Institute at (818) 666-3300.
San Francisco area: California Pacific Medical Center.
Contact Kerstin Spangner, Genetic Counselor, at (415) 600-2628.
Stanford, California: Surviving Painful Decisions
Genetic Support Group at Stanford Medical Center, Call (415) 723-5198.
Connecticut:
Farmington, Connecticut: HOPE
University of Connecticut Heath Center, Genetics MC-6310, Farmington, CT 06030.
Contact Leslie Ciarleglio, MS or Alicia Craffey, MS.
Georgia:
Atlanta area: A Time to Heal
Northside Hospital, 1000 Johnson Ferry Road, Atlanta, GA 30342.
Contact Cathy Wing or Barbara Douglas at (404) 851-8177.
Illinois:
Chicago area: Support Group for Prenatal Decisions
Evanston Northwestern Healthcare, 2650 Ridge Avenue, Evanston, IL 60201. To register, Contact Nancy A. Goldin, L.C.S.W.,
Coordinator for Perinatal Loss, at (708) 570-2883, ngoldin@enh.org.
Group meets the 4th Wednesday of each month from 7:30 9:00 PM.
Indiana:
Indianapolis area: Shared Concerns Support Group
Co-sponsored by Indiana University Hospital and Methodist Hospital of Indiana.
Contact Jane Heustis at (317) 929-8153 or Lynn Deardorff (317) 274-1639.
Iowa:
Des Moines, Iowa area: Prenatal Decision Conference
Iowa Methodist Medical Center, 1200 Pleasant, Des Moines, IA 50309.
Contact Linda Bets, Department of Chaplaincy at (515) 241-5845.
Iowa City, Iowa area: Prenatal Loss Support Group
Duffy and Associates, 1039 Arthur Street, Iowa City, IA 52240.
Contact Alison Milburn at (319) 337-9649.
Maryland:
Bethesda, MD area: Licensed Psychologist
Rachel E.K. Freedman, Ph.D.
Bethesda, MD 20814
(301) 529-6944
Groups meetings are held on some Saturdays and Thursday evenings for individuals and
couples who have terminated a pregnancy for medical reasons.
Rockville, MD area: Licensed Psychologist
Julie Bindeman, Psy-D
Rockville, Maryland
www.GreaterWashingtonTherapy.com
301-468-4849
Call for group information
Massachusetts:
Boston area: G.O.A.L. (Going on After Loss)
Brigham and Women's Hospital, 75 Francis Street, Boston, MA 02115.
Contact Laura Lubetsky, L.I.C.S.W. at (617) 732-5500 ext. 32214.
Boston area: Boston Metrowest: Listening, Reflecting, Healing
Individual and group support services
Contact Mary-Frances Garber, MS, CGC at (781) 366-5300
Licensed Genetic Counselor,
www.listeningreflectinghealing.com
Lexington, Massachusetts area: After Words
Prenatal Diagnostic Center, 80 Hayden Avenue, Lexington, MA 02173.
Contact Barbara Thayer or Bonnie Braddock at (617) 862-1171.
Springfield, Massachusetts area: Prenatal Decision Support and Information Group
Baystate Medical Center, Women & Infants' Unit, 759 Chestnut Street, Springfield, MA 01199.
Contact Karen Banta, MSW at (413) 784-5402.
Michigan:
East Lansing, Michigan: Genetics Support Group
Michigan State University, B-240 Life Sciences Building, East Lansing, MI 48824.
Contact Tonya Diehn or Susan Selke at (517) 353-2030.
Livingston County, Michigan area: LAMB
Livingston County Missing our Babies - Contact: (810) 844-1284
Email: livingstoncountylamb@gmail.com
Like us on Facebook: LAMB
Minnesota:
Minneapolis/St. Paul area: Perinatal Center
Abbott Northwestern Hospital, 800 E. 28th Street, Minneapolis, MN 55407.
Contact Joanne O'Leary, Shari Baldinger or Bonnie Hunt at (612) 863-4502.
Minnetonka Area: Partners in Healing of Minneapolis
Dr. Deborah Simmons, PhD, LMFT
www.drdeborahsimmons.com
10505 Wayzata Boulevard, #200
Minnetonka, MN 55305
Appointments 763-546-5797
FAX: 763-546-5754
Monday, Wednesday, and Thursday from 8 am-5 pm
Tuesday from 10 am-7 pm
Rochester, MN (SE Minnesota and SW Wisconsin area):
Mayo Perinatal Loss Support Group
Rochester Methodist Hospital, 3W-20 Eisenberg Building, Rochester MN, 55902,
C/O Jeri Sehl, Phone (507) 266-7360.
New Jersey:
New Jersey, Central Area: (Monmouth and Ocean Counties):
HART-Healing And Recovering after Termination
Monmouth Medical Center, 255 3rd Ave. Long Branch, New Jersey 07740.
Contact Judy Rokeach or Ivy Leight (732) 923-6527.
New Jersey Summit Area:
FATE Feelings After the Termination Experience,
Center for Human & Molecular Genetics, 90 Bergen Street, Suite 5400, Newark, NJ 07101.
Contact Gisela Rodriguez at (973) 972-3302, rodriggi@umdnj.edu.
Trenton, New Jersey area:
Mercer County, NJ and Bucks County, PA areas.
Time for Healing, Meets one Sunday per month from 7-9 p.m. at the Hopewell Campus of Capital Health System in Pennington, NJ.
Please call or email coordinator Dee Lewis, MA, MS, Certified Genetic Counselor at (609) 303-4026 or dslewis@capitalhealth.org for more information. No fee. Links by phone with other parents also available.
New York:
Albany, New York area: St. Peter's Hospital
Contact Maureen Cavanagh, (518) 525-1388.
Long Island, NY area: Mineola, New York - Winthrop University Hospital
259 First St. (516) 663-2288 or (516) 742-2934 Anna Orologio, A.C.S.W.
We provide support groups for AHC and individual counseling.
New York City: Painful Choices in Pregnancy Support Groups
30 E. 60th Street, Suite 802, New York.
Contact Joann Paley Galst at (212) 759-2783.
New York City: Mount Sinai Medical Center
1 Gustave Levy Place, New York, New York 10029
Contact Laurie Chameides at (212) 241-4685.
New York State: Winthrop University Hospital
Mineola, New York.
Contact Anna Orologio, ACSW at 516-742-2934.
Suffern, New York: Good Samaritan Hospital
Rt. 59, Suffern, NY 10901. Serves Rockland, Westchester, Orange, Ulster and Putnam counties
in New York state and Bergen and Passaic counties in New Jersey.
Contact Pamela Magi, RN at (845) 368-5297.
Williamsville, New York: Precious Lives
(Caring Arms Support Circle)
Millard Fillmore Suburban Hospital, 1540 Maple Road, Williamsville, New York.
Contact Kathleen Skipper, R.N.C. at (716) 568-6653.
The group meets every 3rd Tuesday at 7 pm.
Watertown, New York area: Samaritan Medical
830 Washington Street, Watertown, NY 13601.
Contact Sheila Marie at (315) 785-4184 or (315) 785-4182.
North Carolina:
Fayetteville, North Carolina area: SHARE
Fayetteville Diagnostic Center, 1767 Metromedical Drive, Fayette-ville, NC 28304.
Contact (910) 323-2209 on Tue/ Thur or (910) 487-2986 (Mon/ Wed/Fri). FAX (910) 323-9860.
Raleigh/Durham/Chapel Hill area:
HOPE (Helping Other Parents Endure)
Contact Carla Boor Smith, or DJ Pappas at (919) 966-2229.
Ohio:
Cincinnati area: SHARED (Shared Help After Reproductive Decisions)
Children's Medical Center, 3333 Burnet Avenue, Cincinnati, OH 45229-3039.
Contact Martha Walker at (513) 559-4798.
Ontario, Canada:
Mississauga, Ontario, Canada area:
Wednesday's Child
RR #2, Erin, ON N0B 1T0.
Contact C. Lynn Wilson at (519) 833-2442.
North York, Ontario, Canada area: North York General Hospital
Department of Clinical Genetics, 4001 Leslie Street, North York, ON M2K 1E1 Canada
Contact Andrea Shugar at (416) 756-6345.
Pennsylvania:
Philadelphia Area: A Time for Healing
Sunday evenings, 2nd or 3rd of the month, 7-9 pm,
191 Presidential Boulevard, Suite 133-135,
North Building, Bala Cynwyd, Pennsylvania, (215) 955-0605.
Pittsburgh, Pennsylvania area: Unexpected Choices
Contact Bev Tenenholtz, MS at (412) 578-7346.
Pittsburgh area: Unexpected Choices
320 E. North Avenue, Department of Human Genetics,
11th Floor, South Tower, Allegheny General Hospital,
Pittsburgh, PA 15212.
Contact Darcy L. Thull at (412) 359-6388.
Pittsburgh, Southwest Area: (Mt. Lebanon)
Hugs for Healing Hearts: A Pregnancy Loss Support Group – Meets the second Monday of the
month, 7:00-8:30pm Hugs for Healing Hearts: Subsequent Pregnancy after a Loss Support Group –
Meets the third Monday of the month, 7:00-8:30pm
All meetings are free, refreshments and parking are provided. A trained “Resolve Through
Sharing” facilitator/RN runs the group. It is not time-limiting, members attend as frequently
or infrequently as meets their needs. In addition, phone consultations, referrals and lending
library are offered.
Each October, a walk in honor of National Pregnancy and Infant Loss is held. Each December, a
holiday memorial service is held. All meetings are at St. Clair Hospital, 1000 Bower Hill Road, Mt. Lebanon, PA 15243
Contact: 412-942-5882 or www.stclair.org
Rhode Island:
Providence, Rhode Island area:
SHaRe (Support, Healing and Reflection)
Contact: Jacky Halliday, Women and Infants Hospital, (401) 453-7510.
Texas:
Austin, Texas area:
HOPE (Helping Ourselves through this Pregnancy Experience)
Applied Genetics, Inc., Contact Melanie Casal at (512) 443-4363.
Houston area: Resolution
University of Texas OB/GYN, 6655 Travis #320, Houston, TX 77030.
Contact Patti Furman at (713) 794-5170.
Houston area: Resolution
7400 Fannin #1212, Houston, TX 77054.
Contact Joy Redman, MS, at (800) 543-1346 or (713) 798-9500.
Washington:
Seattle, Washington area: Start Where You Are
UWMC Maternal Health Programs, Seattle WA.
Contact Teresa W., teresaw@u.washington.edu or 206-598-7561.